Alisha ate baby food green beans and sweet potatoes with turkey and then later carrots and applesauce. Today was the first day that Alisha put on her orthotics all by herself!!! It's very hard for her to pull the plastic apart for her to get her foot in.. She always puts on her socks and shoes.
Today was also a kinda hard day or at least it had a hard time in it...
I was having Alisha drink her "milk" (high calorie formula) She was smirking at me and refusing to drink it. I lost my patients and I walked away and left her in her high chair and laid down on my bed. I felt awful but I felt even worse when Mataya came in and softly rubbed on my shoulders. She's not supposed to have to be the grown up!!! She told me that everything is fine. Then she walked out to the kitchen area and asked Alisha in a very quiet almost magic forest fair voice. "Do you want a happy mommy or a sad mommy?" It about makes me cry thinking about it. Then Alisha said "Happy Mommy." Then Mataya said "Then you need to stop being mean to her and drink you milk" All of this was still in the magic forest fairy voice. Then Mataya started playing a game with Alisha with her magic pillow and they were laughing and having a great time... it was way more fun and silly.
I'm so glad that I have such great daughters... Alisha's "milk" all three ounces was finished in about five minutes...
Saturday, July 11, 2009
Day 15
This was our extra day off. We had made plans with a mom who has been here before. This is her son's second trip to work more on chewing instead of pureed foods. Anyway, she had been to New York before and invited my girls and I to go with her. Very nice!! Alisha ate 1/2oz. sweet potatoes and 1/2oz sweet potatoes with turkey... thinking about later I think I could have picked two foods that were more different. She did a great job eating it though while we watched "Horton Hears a Who" We love the rope bridge part along with many others.
We left to go meet our NY visiting mom her two kids and her mother from England. We took a bus to New York on the way there the bus was having problems so they had another bus come up behind us and we switched. The sad part about that is that I grabbed everything except Alisha's really cute yellow hoodie with the flowers..The rest of the trip was great!! After that bus we got two cabs to China Town. We spent a while on Canal St. Tons of purse shopping. I guess that I'm picky... I'm also not really into purses... I did buy some postcards and a toy double decker bus. We had fun with everything that we did. We also went to ground zero. It gave me chills to be there. I bought a couple of booklets. We had lunch on the 2nd floor of a Burger King. I packed lunch Taya and I had shakes and soda with lunch and I syringed Alisha's "lunch."
Along the way I also bought a total of 18 New York post cards because I haven't found any New Jersey ones and a New York hat. Then we went on the Stanton Island Fairy. That was so much fun for the kids and so great to see the Statue of Liberty. I took tons of pictures. It was hard to believe that I was actually seeing it. The Brooklyn Bridge was pretty impressive too. We had a great time on top of a double decker tour bus.. very funny tour guide!! Then the kids had a great time running and playing at Central Park. That's a sentence that I never thought I would write. The only time I hear about Central Park involves a speratic murder or a movie location. So I always thought that they really dressed it up for movies because nobody gets murdered in pretty places right?!?!?.. for anybody as silly as me (let me pretend these people exist!!) I will tell you that it is gorgeous pretty all the time and it was wonderful to see and talk about the Elf movie seen where they sing to create more Christmas spirit. Then the kids just ran around on the huge rocks and grass and tossed rocks in the pond and it just looks almost magical all the time.. I wish I took more pictures there... Then we went to time square. Very fun to be there!! I think NY reminds me of SF except a higher feeling of energy. There were very fun very helpful people.
Then we got a bus back to Paterson. All totaled this day cost $46.00... I'm rather impressed. We said goodbye til Monday and the girls and I drove back to the hotel.....ZZzzzzZZZZzzzZZZ
We left to go meet our NY visiting mom her two kids and her mother from England. We took a bus to New York on the way there the bus was having problems so they had another bus come up behind us and we switched. The sad part about that is that I grabbed everything except Alisha's really cute yellow hoodie with the flowers..The rest of the trip was great!! After that bus we got two cabs to China Town. We spent a while on Canal St. Tons of purse shopping. I guess that I'm picky... I'm also not really into purses... I did buy some postcards and a toy double decker bus. We had fun with everything that we did. We also went to ground zero. It gave me chills to be there. I bought a couple of booklets. We had lunch on the 2nd floor of a Burger King. I packed lunch Taya and I had shakes and soda with lunch and I syringed Alisha's "lunch."
Along the way I also bought a total of 18 New York post cards because I haven't found any New Jersey ones and a New York hat. Then we went on the Stanton Island Fairy. That was so much fun for the kids and so great to see the Statue of Liberty. I took tons of pictures. It was hard to believe that I was actually seeing it. The Brooklyn Bridge was pretty impressive too. We had a great time on top of a double decker tour bus.. very funny tour guide!! Then the kids had a great time running and playing at Central Park. That's a sentence that I never thought I would write. The only time I hear about Central Park involves a speratic murder or a movie location. So I always thought that they really dressed it up for movies because nobody gets murdered in pretty places right?!?!?.. for anybody as silly as me (let me pretend these people exist!!) I will tell you that it is gorgeous pretty all the time and it was wonderful to see and talk about the Elf movie seen where they sing to create more Christmas spirit. Then the kids just ran around on the huge rocks and grass and tossed rocks in the pond and it just looks almost magical all the time.. I wish I took more pictures there... Then we went to time square. Very fun to be there!! I think NY reminds me of SF except a higher feeling of energy. There were very fun very helpful people.
Then we got a bus back to Paterson. All totaled this day cost $46.00... I'm rather impressed. We said goodbye til Monday and the girls and I drove back to the hotel.....ZZzzzzZZZZzzzZZZ
Tuesday, July 7, 2009
Day 14
We got home the the Center and went grocery shopping AGAIN!!! I can never stop to write a list or think and I can't remember things when I'm at the store or anywhere else but I knew that I did need more lunch stuff.. So away we go.. I'm sure we are at the store three to four times a week.... Anyway, after we get home I'm really really tired... I know that we are going to be walking a lot tomorrow.. So we have a movie night together it was a nice normal home~E night.. I loved it.
Day Ten
Alisha ate her water and apple sauce from 8:50 to 9:08. Then we got ready for church and I love going to church here. There are so many trees-- the drive is so pretty. The whole place is just gorgeous!! They have great people!! There are about 20 or less sisters every week and I have way more then 10 phone numbers from people who asked that I call them if we need anything!! It is just such a wonderful feeling!! I feel a part of their ward.
I love that they have pictures of every sister with her name on the bulletin board by the relief society room and inside the room on a side wall is a blown up laminated map with a typed label for every sister with her name etc. on it and attached to the map according to where they live!!! I have wanted that kind of a set up for every ward that I've been in. It's a huge help with names and faces and who you live by and I think it helps to have more of a family feeling.
After church we came home and ate. Alisha ate water and applesauce from 2:30 to 2:55 and we left to go see Michele, Skylar and their family. Her family lives in a town called Totawa... I think it sounds fun like a valley girl with a speech impediment!! ( yeah, it really doesn't take much for me.) WE had a wonderful time!!! Her family was so wonderful we talked like old friends and it was such a great time for us!! Beyond Hospitality!!! Wonderful family!!
Thanks again for having us!!!
I love that they have pictures of every sister with her name on the bulletin board by the relief society room and inside the room on a side wall is a blown up laminated map with a typed label for every sister with her name etc. on it and attached to the map according to where they live!!! I have wanted that kind of a set up for every ward that I've been in. It's a huge help with names and faces and who you live by and I think it helps to have more of a family feeling.
After church we came home and ate. Alisha ate water and applesauce from 2:30 to 2:55 and we left to go see Michele, Skylar and their family. Her family lives in a town called Totawa... I think it sounds fun like a valley girl with a speech impediment!! ( yeah, it really doesn't take much for me.) WE had a wonderful time!!! Her family was so wonderful we talked like old friends and it was such a great time for us!! Beyond Hospitality!!! Wonderful family!!
Thanks again for having us!!!
Day 13
Alisha weighed 31 pounds. Every two hours, after every meal, Alisha drank 90mls of nutren --this is a high calorie drink that usually would go into her pump. The most that I have ever been able to pump into her and have her be able to keep it down was 75mls per hour. The math works for spreading her meals out that she should be able to have more but it never actually worked out that way. This is amazing!!
Later at home Alisha had five bites of sweet potatoes she refused all the rest of the bites!! She was so tired!!!! I shouldn't have had a feeding so close to her bedtime. That was totally my fault.
Later at home Alisha had five bites of sweet potatoes she refused all the rest of the bites!! She was so tired!!!! I shouldn't have had a feeding so close to her bedtime. That was totally my fault.
Day 12
Today Alisha weighed 31lbs. Her baby food was only diluted with 25% water. She can eat apple sauce, green beans, carrots, sweet potatoes and DRINK her Nutren 2.0!!!! About 20 minutes after her meals that at this point are only 2hours apart with a 1/2 oz. of one food and a 1/2 oz. of another Alisha drank 65mls of her Nutren 2.0 from a cup.
We had another parent meeting today. We talked about all the progress that our kids have made and how we made it through the weekend. Towards the end of the meeting we talked about having our next meeting on Thursday because we were all having Friday off because of the 4th of July. I was kinda sad about missing a day because that is what we are here for. Then I quickly got to thinking about being able to sleep in a little and not HAVING to be someplace.. I thought one day less isn't that bad... Later when I was talking to another mom in the observation room she brought up about how she was feeling about things.. That she was responsible for feedings alone for an extra day. Hmmm. didn't think about it like that... dum dummm dummmm!!!! (thunder in the back ground..) :) It will be fine..
Later today at home she ate 3 Doritos chips and drank 4oz. of Nutren in one sitting!!
We had another parent meeting today. We talked about all the progress that our kids have made and how we made it through the weekend. Towards the end of the meeting we talked about having our next meeting on Thursday because we were all having Friday off because of the 4th of July. I was kinda sad about missing a day because that is what we are here for. Then I quickly got to thinking about being able to sleep in a little and not HAVING to be someplace.. I thought one day less isn't that bad... Later when I was talking to another mom in the observation room she brought up about how she was feeling about things.. That she was responsible for feedings alone for an extra day. Hmmm. didn't think about it like that... dum dummm dummmm!!!! (thunder in the back ground..) :) It will be fine..
Later today at home she ate 3 Doritos chips and drank 4oz. of Nutren in one sitting!!
Day 11
Today Alisha weighed 31lbs!! She also ate her baby food carrots and green beans only diluted to 50%!! Alisha also drank her formula!!! That is a total first!!! She drank 20mls after her first feeding and 30mls after the 2nd, and 65mls after the third!!!
Today was a great feeling day. I don't really believe in happenstance. Today I talked to two moms that happened to have some minor problems with areas that I had some experience and some hopefully short funny stories to go with it to make my life lessons stick.
It was good. I love it when it just feels good for everybody all around. I love it when we can talk and help each other going through this as a group is very helpful!!! I've been part of a few mommy web sites but as great as they have been for me they can't even touch what it feels like to literally sit around a table with all of these been-there-done-that parents!!! We laugh at some of the crazy adaptive things we have done for our kids.. and all the different kinds of spoons and things we have bought.. we all look at each other and laugh!!! (It's not the SPOON!!)
Today we were talking so much just having fun together that we didn't leave the observation room between feedings and we were already there two hours later when it was time for our kids to eat again. Very nice day. I very firmly believe that this therapy would not work if I read a book about it or even watched a how to video. I don't believe that it would work if we went three or even for times a week in my home town. I believe that it really takes making it be for your whole life for several weeks. This is wonderful!! I hope everybody keeps talking about this program because you never know all the people the person your talking to knows.
Thanks!!
Today was a great feeling day. I don't really believe in happenstance. Today I talked to two moms that happened to have some minor problems with areas that I had some experience and some hopefully short funny stories to go with it to make my life lessons stick.
It was good. I love it when it just feels good for everybody all around. I love it when we can talk and help each other going through this as a group is very helpful!!! I've been part of a few mommy web sites but as great as they have been for me they can't even touch what it feels like to literally sit around a table with all of these been-there-done-that parents!!! We laugh at some of the crazy adaptive things we have done for our kids.. and all the different kinds of spoons and things we have bought.. we all look at each other and laugh!!! (It's not the SPOON!!)
Today we were talking so much just having fun together that we didn't leave the observation room between feedings and we were already there two hours later when it was time for our kids to eat again. Very nice day. I very firmly believe that this therapy would not work if I read a book about it or even watched a how to video. I don't believe that it would work if we went three or even for times a week in my home town. I believe that it really takes making it be for your whole life for several weeks. This is wonderful!! I hope everybody keeps talking about this program because you never know all the people the person your talking to knows.
Thanks!!
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