Blogumentary

I wanted to try to make this a blogumentary for all of our family friends and everyone that made this trip possible. I will do all that I can to make this trip successful. I also really want to make this be an awesome resource for all the families who plan to go to St. Joseph's Feeding Center. I do not however plan on sharing a lot of details about how they feed Alisha. This is not DIY and I don't think reading a book about how to swim will do you much good. Every child is unique and has their own mountains to climb and like a lot of things in life you will just have to experience it for your self and I really hope you do and spread the word to as many others that you can while you are at it.

One Last Push We Are Almost There!!!

Hello all!! First, we want to thank once again everyone who has helped, volunteered, donated, bought pizza or mary kay, and came to get their car washed!!!! THANK YOU ALL SOOO MUCH!! We are just 11 days from Alisha's departure date and we are making a last push effort with a 2nd Pizza Fundraiser at Straw Hat at 2929 Matherfield Road. Skip the owner has graciously said he will repeat the same fundraiser as last time. So, anyone who goes into Straw Hat on Monday June 15, 2009 from 11 a.m. to 10 p.m., mentions Alisha's name and orders a regular priced pizza of any size, Skip will donate 50% of that pizza purchase to Alisha's trip. This only applies to pizzas purchased.

Thank you Skip!!!

Thank you again....come enjoy some pizza with us on Monday June 15, 2009. Also you can wish Alisha, Heather and Mataya a successful trip to the St. Joseph's Children's Hospital Center for Pediatric Feeding and Swallowing. Heather will be blogging about their experiences so keep checking back to stay updated with Alisha's progress in New Jersey!!!

Mary Kay Fundraiser Is Still Going!!!

As mentioned in a previous post a friend of ours, Melissa Lilley, is a Mary Kay consultant and she is generously donating 20% of what she earns up and until the first week in June! WOW!! She has so far raised a little over $100 for Alisha's trip to New Jersey. Thank you Melissa. To order through her please go to the following link www.marykay.com/mlilley . Also, free shipping to anywhere in the USA!! Can't beat that! Thanks again to all!!

One Month To Go!!! Thank You To All!!

Well we are down to one month before Alisha heads to New Jersey for her feeding and swallowing therapy. And, we are oh so very close to our goal!! We would like to thank everyone who has donated, volunteered and offered their support through well wishes and prayers!! Thank you so very much!!!

FYI Show KNCI CdLS Awareness May 2009

Tom Mailey Hosts a conversation with Heather Hull, mother of Alisha, and Marie Malloy with the CdLS Foundation. They talk about CdLS and the CdLS Awareness Day May 9, 2009.

CdLS National Awareness Day May 9, 2009

Hello All,

Coming up May 9, 2009 is the CdLS Awareness Day and to help spread the word about this syndrome, which Alisha has, we have arranged to have Heather and Alisha on a Public Service Announcement show called FYI with Tom Mailey at New Country 105.1 KNCI. Along with Heather and Alisha will be the Director of External Affairs for the Cornelia de Lange Syndrome Foundation, Inc., Marie Malloy. They will talk about the syndrome in general terms and about the necessity to get the word out because there are still children who have not been diagnosed who have CdLS and it can be life threatening if left unchecked. If you'd like to check it out the show will air this Sunday morning at 6 am on 105.1 KNCI. Hopefully once it airs we will get an MP3 copy that we can then post on the blog here for anyone interested. Remember May 9, 2009 CdLS Awareness Day!!!

Fundraiser Announcements

Hello everyone,

Please spread the word about the three fundraisers below.

We are also announcing three fundraising opportunities we have been able to line up:

1. Straw Hat Pizza Fundraiser: Thursday, April 23, 2009 from 11am to 11pm we will be having a Pizza Fundraiser all day long at Straw Hat Pizza located at 2929 Mather Field Road, Rancho Cordova. Dine-in and carryout only. 50% of the pizza purchases will go to support Alisha's trip to New Jersey that day.
   Thank you Skip!!!
   
   WOW!!! What a day!! Things went very well with the Straw Hat Pizza Fundraiser!! Thanks to all the hard work of everyone who told friends and family about it, stood outside with signs and the awesome staff at Straw Hat we were able to raise....drumroll please..... "sound of drumroll here"....$864 from pizza sales!!!! Also in the couple of days prior up through Thursday night many people gave cash directly to help Alisha get to New Jeresy in the amount of $347!!!! WE THANK YOU ALL SO VERY MUCH!!!
   


2. Car Wash Fundraiser at Firestone: Saturday, April 25, 2009 we will be holding a car wash fundraiser from 8am til 2pm at the Firestone located at 10407 Folsom Blvd in Rancho Cordova. The manager at Firestone, Danny, has offered a coupon for 'one free oil change' to be given to the first five washed vehicles Saturday morning (good only at this Firestone location).
   Thank you Danny!!!
   
   Wow Oh Wow Again!!! Today was the Car Wash Fundraiser and it went splendedly!! Big Thanks to everyone who came out to help wash cars!! A Special Thanks to the parents who brought their kids out to lend a hand washing cars!! Vaughn, Thanks for the use of the Easy Up Shade canopy!! Super Big Thanks to all of the people who stopped by to get their car washed!! Our total for the car wash today was $782!!! THANK YOU ALL FOR YOUR HELP!!!
   
   We would also like to thank a few businesses that gave a little to help us a lot. First, Firestone for allowing us to hold the car wash at their location and the oil change coupons. Little Caesar's Pizza on Zinfandel Drive for providing 5 pizzas for our volunteer's lunch. Absolutely More Bounce (http://www.morebounce.net/) for donating the snow cone machine and supplies. Also, Raley's for the ice to keep our drinks cold and making the snow cones!!
   
   
3. A friend of ours, Melissa Lilley, is a Mary Kay consultant and she is generously donating 20% of what she earns over the next four weeks!!!! WOW!! Thank you Melissa. To order through her please go to the following link www.marykay.com/mlilley .
   
   We look forward to seeing a lot of our family and friends at these events and meeting some new friends!!! Thank you for your support and please pass the word along about the excitement this coming week!!