Hello All,
Coming up May 9, 2009 is the CdLS Awareness Day and to help spread the word about this syndrome, which Alisha has, we have arranged to have Heather and Alisha on a Public Service Announcement show called FYI with Tom Mailey at New Country 105.1 KNCI. Along with Heather and Alisha will be the Director of External Affairs for the Cornelia de Lange Syndrome Foundation, Inc., Marie Malloy. They will talk about the syndrome in general terms and about the necessity to get the word out because there are still children who have not been diagnosed who have CdLS and it can be life threatening if left unchecked. If you'd like to check it out the show will air this Sunday morning at 6 am on 105.1 KNCI. Hopefully once it airs we will get an MP3 copy that we can then post on the blog here for anyone interested. Remember May 9, 2009 CdLS Awareness Day!!!
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that is awesome! may 9th is just around the corner! time sure does fly! can't wait to hear about it!
ReplyDeleteThat's great that you arranged this! I had forgotten how close CdLS awareness day is! I'll have to think of something special to do that day!
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